I was born on September 13, 1991. I was really small as a baby. The doctor put me in a special bed. In fact, I was so small that I had to wear socks from my sister's doll. My head was as big as my mom's fist.
I’m the youngest one in my family. I have an older brother and an older sister...and, of course, my mom and dad.
Sports have always been important to me. My dad coached sports such as basketball, football, and baseball for over 15 years. My brother played football in school. So, I've grown up surrounded by sports.
Since I was a little kid I've liked playing basketball. I've had a ball in my hands ever since I can remember. But what I really liked to do was lay on the couch because I was always sick, and nobody could find out why. Even though I went outside I didn't stay out long. I didn't eat much either.
Then, one day my life would be changed forever. Finally, after five and a half years of illness, allergies to half the antibiotics available to me and over 100 medical appointments we found a doctor who I still see today. His name is Dr. Shapiro. He told my parents and me that I had common variable immunodeficiency disease or CVID. It's one of over 150 primary immunodeficiency diseases. So, we contacted the Immune Deficiency Foundation which helps people like me. IDF provided us with information and support.
My mom and I have traveled to many places to speak about primary immunodeficiency diseases. We’ve been to Europe, to many cities in the United States and to Capitol Hill to meet with senators and representatives. My story was told on the television program “Mystery Diagnosis.” This show helped other people be diagnosed with CVID and people living this condition realize they aren’t alone.
Every 14 days I receive 30 grams of immune globulin. It is infused intravenously (IVIG) into me by a home healthcare nurse. The immune globulin is made from plasma. Without IVIG I would be sick all the time.
My life is much better now that I receive infusions. I'm able to do whatever I want to do. My dream for the future is to go to college and obtain a good job. Regardless of what happens to me in the future, I'll be happy as long as I can continue receiving my infusions and being able to live life to the fullest.
The “Mystery Diagnosis” episode can be viewed on You Tube at the following links:
Part 1 of 2 http://www.youtube.com/watch?v=HqcYl6O9z8c
Part 2 of 2 http://www.youtube.com/watch?v=XWnP60R89V0